Friday, September 24, 2010

Aly had an angioma which bled into her brain

And everywhere that Aly went she hid behind her pain.

I write here knowing that I am screaming at the top of my lungs from the top of the tallest building in the world but as in a dream no sound comes from my mouth. My consciousness stirs me from my slumber ever so slightly as a part of my sleeping mind asks why, why no sound, why can't I scream?


I had lunch with a wonderful woman from work. Her story is remarkable. There are so many amazing people out there. I never got to tell her that she was the reason I was hired. She understands the paralysis. The inability to move. The tears that come from nowhere and just will not stop. She lost her daughter. Her own cancer is in remission. She made time for me. She listened to my story, and I to hers. And now I want to live with my mommy so she is never alone. And I can cry and she can pat me and tell me it will be okay.

I work in isolation and fear. It should not be like this!!!

Thursday, September 16, 2010

I rant and rave. I can't and cave.

"I hope you agree." "I'm sure you can understand." "I think you should relax." Words from people who tried very hard to convince me my perceptions were wrong, skewed, distorted, and mistaken. I get no satisfaction from revealing the fraud because I had no choice but to trust them. So, once again. 

Life is but a dream. 

One of my favorite classmates from my master's program gave me this on one of the first days:

She said, "I found this for you. It was on the ground." I thought my ears were playing tricks on me but she was not appealing to my compulsive need to collect useless bits of detritus. She was merely meant to clarify that she was no plant mutilator. She told me it would last for three weeks and it did. The ear of a lamb. So soft, so lamby.

I can't believe they made Never Let Me Go into a movie. That book changed my life. It better be good.

Monday, September 13, 2010

I finally slept and then I went to school...

to find that my worst nightmare was true. No matter what I do, they want to drag me down. Every year since my return, they have redefined my role, mixed things up, confused and confounded me, but I kept going and I succeeded. But for some reason the next year they said I didn't and gave me a different job. I cried so much today I feel like a squeezed out rag. I am going to stay in the behavior box. They cannot hurt me. I am going to be a good little soldier and do what I am told this year. I am a very good teacher. I love children. They can't take that away from me. I will find a way. I have something unique to offer. Still! TBI or not! I will help and I will create an environment of learning where my students feel safe to grow and learn. Wish me luck! The only living girl in New York. And Betty when you call me, you can call me Al. There are days when I think that I could be in love with almost everyone. I think people are the greatest fun.

Home sick

I feel nearly delirious. I do not want to eat until I get my old job back. I am good at teaching sixth grade math. I am good at teaching enrichment math. I am not so good at planning ahead or understanding what people say when they say something I am not expecting. I have to pause and think and process and maybe even think again about it later.

Write to me if you think I have any reason not to feel totally humiliated that my job is now being done by the woman who took ever for me while I had surgery and a woman who was my assistant for a year? Neither one ever asks me what I did or what to do when...

I am dust to sweep under the carpet. Hide me away!

Thursday, July 29, 2010

I am obviously unread maybe even brown bread

Today I go for Round Number 4 of a full day of neuropsych testing to see how well the 3 months of cognitive rehabilitation went. Six months before, one week before, one week after and six months after. At this point with my relationships further deteriorating, the misunderstandings piling up behind me, the wreckage of failed friendships, and the occasional dose of charitable pity, I feel like giving up. It is one of those sad, I just can't take it anymore days. Oh good, something to look forward to the deep morass, the sinking sucking black tar that will grip my whole body and weigh me down. I keep defending myself. I was just trying to help but then people get hurt. I am clearly misguided. My own cognitive distortions too strong to be distinguished from fiction, I will have to completely break from my own sense of reality to see my hand in front of my face. Can someone tell me why it is worth it?

Saturday, July 24, 2010

Sometimes you really shouldn't trust people or how LCBD


Ah, the wolf in sheep's clothing. I will beware after seeing behind the facade. No more fleece-eyes here. (soap-eyes, soap-eyes was a scary game Suz and I played as kids when we were getting ready for bed, remember? that and the throat-clearing noise threatening to spit toothpaste on the other's hands

If you know me at all, then you know that lambs are one of my favoritist things in the world.
No, that is not a drawing of a goat. It was a goat but the artist did not believe the name sounded P.C. Hence, Fasheepey. In later renderings, his fleece is more apparent.

Aly had a little lamb, his fleece was slow to show. 
And everywhere that Aly went, the lamb was sure to go.

At my school program this summer, I think I presented myself poorly. My social graces, the person I used to present initially is smothered under layers of complication. I learned this about myself recently. Reflecting back on the period of my life when I was in my late twenties and early thirties, a time of serial monogamy, I recall the observation someone made about me that I was so quiet when they first met me and how different I seemed after spending time with me. I had many transitions socially as a result of changes in steady boyfriend. With each new beau, there came a whole new group of friends (Usually. I did prefer guys with lots of friends.), and initially amongst a group I held back listening respectfully, gauging the situation, cautiously preparing comments to deflect attention away from myself until I felt safe. People deemed me quiet or shy after our initial encounters. 

Truly, I am anything but that. In less social settings, I was judged as standoffish or aloof. Again, not me although closer. But, and I am not just saying this, I think my sister would concur, I did present as likable. In situations where I did not feel any pressure because it was unlikely I would see any of the people again, I was gracefully gregarious. I was accepted and welcomed, enjoyed and encouraged, socially adept and generally insightful. Suz brought me to a party after Sting performed and I worked the room like a pro. Even the events planner commented that I would be great at her job. One on one conversations were a breeze as a result of a lesson I learned from my favorite couple at that time A & M. The lesson M taught me was to just ask questions and listen intently, absorbing the person in like the aroma of baking bread.

Even my father used to say, do not worry about being included, just include others. WTF that meant. But it makes sense now. I did not worry for experience had taught me that I would be accepted and so I made others comfortable by casting them in the leading role for those moments in the movie of Aly's life. What was that like? Fascinating, and then you did what? I am so intrigued, I must know more. And like a chameleon, I had the outfit appropriate for every situation, hair and make-up adjustable, height and weight so insignificant no one would notice me. I will slip into your life and when you accept me, I might be myself.

And that was often when people were shocked by what came out of my mouth. My guard was down and I quipped to get a reaction. Scathing, funny, cutting, raunchy, bizarre, too close for comfort, edgy, off-color, or disturbing. But I meant it to stir the pot or stimulate the conversation, not to injure or attack. Of course, there were times when I was misunderstood and my comments taken as insensitive. I guess the people who really love me did not tell me how frequently this was the case but I still hold firm to the notion that I did not intend to hurt others and was quick to set matters straight after any misunderstandings.

Fast-forward to September of 2007 when my life began to spiral out of control. The vortex of chaos. I have always measured my self-worth by how I think I am judged by others. The reactions I got no longer matched who I thought I was. Did I change or did my ability to read others change? Neither? Both? My lack of understanding of the extent of my injury, my slow processing of input, my over-confidence in my perceptions, and my tendency toward impulsiveness created an unfortunate combination that reduced my self-efficacy to a pile of ash. No longer sure how I am being perceived, I mistakenly jump to the conclusion that I will not be accepted, that I will behave oddly and be shunned. This in turn becomes a self-fulfilling prophecy.

Away at school, I saw a counselor whose first name happened to be the same as mine. I joked that it sounded like a soap-opera title but I think it was more like an SCTV skit I saw once. Rick Moranis playing Dick Cavett  interviewing Dick Cavett.
 
At our second meeting, Alison recapped our first meeting for me, her intonation, phrasing, rhythm, and voice sounding so eerily like my own.  "Last week on Alison and Alyson discuss Alyson, ..." 


But it is the weekend of the move and the words of B that weigh heavily on my heart. (Not my S.O. B, he is a pillar of strength. Tee hee. B, my S.O. looks better. But I digress.) I thought B could be trusted, that he liked me, that he would be honest with me, but I was so wrong and I hate that. Like an Etch-a-Sketch shaken, the image I had was gone with just one phrase. "You are not paying me now." Well, he better be paying me soon. He owes me 2 C and 1 L.

On the phone with E who mentions she will be leaving in half an hour, then to my surprise she is already gone when I arrive not 7 minutes later. I can only picture the speed with which she must have departed to be out prior to my arrival. No real surprise there but does anyone else see that the emperor is not wearing any clothes?

Friday, July 2, 2010

D-O-G is dog! D-O-G is dog!

Holding her board book of animals and their homes, Sachi yelled out these words as she ran into the kitchen to rearrange the fridge magnets. Wearing only a diaper, she scrambled to arrange the D, the O, and the G. She had memorized the alphabet and also the names of the animals in her book but at two years old suddenly she realized letters formed words.


Today she is 24! Sachi is no less capable today. There are problems, puzzles, codes, obstacles of all forms in life. By just continuing to do everything she loves, her brain makes sense of the world. 



Occasionally, when it doesn't happen as fast as she would like, Sachi gets frustrated. There are times she does not like what she learns and that makes her angry. Other times, she is impatient that everyone does not see what is so clear to her. 





I am so proud that she follows her heart and even though she doubts it at times, she trusts her instincts. Passionate, sensitive, and generous, Sachi is able to give love that is like an elixir. There is no better medicine for what ails me than knowing I am loved by Sachi.




HAPPY BIRTHDAY! You are my sunshine! You are my pumpkin dumpling, my cuddle bunny, my pride, my joy! I'll love you forever. I'll like you for always. As long as I'm living, my baby you'll be.

Tuesday, June 29, 2010

I trip, fall, and then, get up again.

I am at school. A student, actually a graduate student, is what I am. It is a bit of a mind %*#@ if you want the truth. It feels like I am dreaming.

I know this looks so gross. It is one of the worst bruises I have ever had. I have to stop falling down. I need to go read. Wish me luck.

If I can't have my brain back, I may as well get a degree. It is like the Wizard of Oz tells the Scarecrow, "Why, anybody can have a brain. That's a very mediocre commodity. Every pusillanimous creature that crawls on the earth or slinks through slimy seas has a brain! Therefore, by virtue of the authority vested in me by the Universitatus Committeeatum e pluribus unum, I hereby confer upon you the honorary degree of Th.D."

Saturday, June 19, 2010

Robotic Beings

Why would this normal looking lady need a vacation? This is after three and half hours of studying with one of my favorite students ever! We needed a little comic relief so we did the robo-boogie because "finally robotic beings rule the world!"


Just seeing this photo makes me feel so happy that I do what I do.

Thursday, May 6, 2010

I thought it would just go back to the way it was before.

What a surprise! Things are so different. I am so different. I don't even know who I am anymore. Click on the title of this post to view my video 2 weeks after surgery.