tag:blogger.com,1999:blog-5842331537436075746.comments2023-12-15T03:23:10.468-05:00T.B.I. To Be InvisibleUnknownnoreply@blogger.comBlogger297125tag:blogger.com,1999:blog-5842331537436075746.post-83018430856806754232020-09-12T23:47:01.088-04:002020-09-12T23:47:01.088-04:00I forgot your description of the horrible Diane Sa...I forgot your description of the horrible Diane Sawyer interview! I can never get it out of my head. Dianne was condescending, talking to Gabby in that sing-song-y voice, "and are you angry?" She turned to Mark for any substantive questions assuming Gabby had nothing to add. but he held his/their ground.I'm sure he's tough with her & himself, but he treats her as a partner.to him she was the third person in the room - the one who's story it was, and he just helped with expressing her words.He is straight with her, without pity or hovering. Just love and confidence, and knowing life's hard. My opinion of him shot up as diane went down the toilet.Lauriehttps://www.blogger.com/profile/08251559436957947478noreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-11919159286987809192017-06-01T19:57:04.364-04:002017-06-01T19:57:04.364-04:00I think you did an AMAZING JOB!!!I LOVE ITI think you did an AMAZING JOB!!!I LOVE ITpbearhttps://www.blogger.com/profile/05778040552034332428noreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-37513117262954879912015-12-01T05:28:34.577-05:002015-12-01T05:28:34.577-05:00I true think that all people (men and women) are v...I true think that all people (men and women) are valued parts of the human race. Everyone dies, but it is a great loss to the planet every time!<br /><br /><br /><a href="https://www.youtube.com/watch?v=6ZeR85s5oxI" rel="nofollow">Traumatic Loneliness</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-68936269872846445362015-11-17T08:01:58.769-05:002015-11-17T08:01:58.769-05:00I am too inspired from this blog thanks for share ...I am too inspired from this blog thanks for share this informative blog post with us keep it up for share more information with us.<br /><br /><a href="https://www.youtube.com/watch?v=6ZeR85s5oxI" rel="nofollow">Traumatic Loneliness</a><br />Sarah Edwardhttps://www.blogger.com/profile/01375792740553358110noreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-33591411662948312472015-09-14T00:06:38.126-04:002015-09-14T00:06:38.126-04:00hi alyson- i used to play darts with you out east ...hi alyson- i used to play darts with you out east many moons ago- i'm really sorry about what you have had to deal with- i hope you are doing ok- bruceAnonymoushttps://www.blogger.com/profile/07031477405605161128noreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-73105902985389158572015-08-01T11:36:07.434-04:002015-08-01T11:36:07.434-04:00Hi Aly,
You ARE unique, and special, and valuable....Hi Aly,<br />You ARE unique, and special, and valuable. I think your observations are on the money. Death waits for us all but we do not have to accept mediocrity in the meantime. <br /><br />From everything I have read here over the years (and that's a lot) personally, I reckon your pupils were darned fortunate to have a teacher as motivated, caring, and interested in their own learning needs and welfare as you. Keep on being the best you can because, along with the love of your family and friends it is what life is about. I'm sending my love and best wishes to you from Down Under.<br />Brett xoxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-27659042103618916832015-06-05T14:14:02.351-04:002015-06-05T14:14:02.351-04:00Hi, I'm Lindsey! I have a question and would l...Hi, I'm Lindsey! I have a question and would love to speak with you about your journey. Could you please email me when you have a chance? Thanks so much, I look forward to hearing from you :) lindseyDOTcaldwellATrecallcenterDOTcomAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-39990515981308045672015-03-14T10:44:42.648-04:002015-03-14T10:44:42.648-04:00Hi Aly,
I like your blog. I am a bit over 5 years ...Hi Aly,<br />I like your blog. I am a bit over 5 years since my TBI. I just got a bunch of congratulations via LinkedIn for my 5 year anniversary of "freelance." I paint digitally for live action film and animation in VFX. It hit me hard. I have only worked a few weeks as a test since my accident. That did not go well.<br />I am invisible too. I have lost all but one friend post TBI. I will read more of your blog. Hang in there. :)<br />Anonymoushttps://www.blogger.com/profile/09022386032269119935noreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-15901406777863438942015-03-12T18:03:59.534-04:002015-03-12T18:03:59.534-04:00Congratulations on all those years of living and b...Congratulations on all those years of living and being that you have accomplished! What an awesome defiance in the face of trying times. It's great that you seem to have moved on past the initial difficulties, but I hope you can still look back at the onset of your condition and find more truths that may be of utmost importance. Thanks for sharing that inspiring post, Aly! All the best to you!<br /><br /><a href="http://medicalattyny.livejournal.com/11566.html" rel="nofollow">Sabrina Craig @ Medical Attorney NY</a> Sabrina Craighttps://www.blogger.com/profile/06094554516202049753noreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-39483298297215686522015-01-27T22:31:57.241-05:002015-01-27T22:31:57.241-05:00Hi. I feel alone in this and wonder if I can talk...Hi. I feel alone in this and wonder if I can talk to you both. I was diagnoses in June 2014- I have know there was a problem for a few years. But now I can no longer work. I need to talk with other people who have this. janise Zapanra Facebook or Janise211@aol.com.Navy Wife Janise Zapantahttps://www.blogger.com/profile/01313813948087037042noreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-2743812758225349052014-12-29T05:48:26.171-05:002014-12-29T05:48:26.171-05:00Hi Alyson,
Just stumbled upon your blogs.
I totall...Hi Alyson,<br />Just stumbled upon your blogs.<br />I totally 'get' what you are saying.<br />By the way, you express yourself eloquently. Back in 2006, I survived a brain haemorrhage. A few friends that I had known a long time, also disappeared as they did not understand me anymore.<br />I used to grieve about this...until I realised it's their loss and have accepted who I am today. Everyday is<br />still a challenge for me. Like you, I try not to create conflict with strangers that shit me. It's not easy to do! Enough ramblings for now.<br />Claireclairebearhttps://www.blogger.com/profile/12096928843485624559noreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-87526983419558211272014-12-29T05:45:52.200-05:002014-12-29T05:45:52.200-05:00Hi Alyson,
Just stumbled upon your blogs.
I totall...Hi Alyson,<br />Just stumbled upon your blogs.<br />I totally 'get' what you are saying.<br />By the way, you express yourself eloquently. Back in 2006, I survived a brain haemorrhage. A few friends that I had known a long time, also disappeared as they did not understand me anymore.<br />I used to grieve about this...until I realised it's their loss and have accepted who I am today. Everyday is<br />still a challenge for me. Like you, I try not to create conflict with strangers that shit me. It's not easy to do! Enough ramblings for now.<br />ClaireAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-39223557647571682302014-11-20T15:44:29.105-05:002014-11-20T15:44:29.105-05:00It's really worth noting how all your recent p...It's really worth noting how all your recent problems is rooted to the injury you sustained when you were small. However, the fact that you are writing this now, and are able to address such contradictions and dilemmas, is really admirable. I can really read your message loud and clear. It's never too late to find and seize the truth and set things right, you know. Thanks for sharing your story! All the best to you!<br /><br /><a href="http://medicalattorneyny.wordpress.com/2014/10/24/new-york-birth-injury-attorney-malpractice-related-cerebral-palsy/" rel="nofollow">Sabrina Craig @ Medical Attorney NY</a> Sabrina Craighttps://www.blogger.com/profile/06094554516202049753noreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-82462637210761595842014-11-09T03:11:56.590-05:002014-11-09T03:11:56.590-05:00Brett,
All is well. I lost another friend to my br...Brett,<br />All is well. I lost another friend to my brain injury. It makes me sad and I wrote this right after am angry nightmare. I really appreciate your note. It is a reminder to me that despite my many losses, my life is full of unforeseeable gains. <br />Warmly, AlysonAly Vhttps://www.blogger.com/profile/12018292974267917861noreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-48927803382702367532014-11-07T08:38:30.893-05:002014-11-07T08:38:30.893-05:00How is your art going Alyson? Last time you mentio...How is your art going Alyson? Last time you mentioned it you sounded happy about where you were going with it. <br /><br />I am sending you my best wishes from Tasmania because, believe it or not, I care. You are worth caring about.<br />Best,<br />Brett xoAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-27352179559041207222014-08-15T06:45:58.309-04:002014-08-15T06:45:58.309-04:00Unbelievable! I was 44 when mine showed up. Do you...Unbelievable! I was 44 when mine showed up. Do you know if i t is operable yet? Do you know about the Angioma Alliance? They have a lot of reliable information. <br />Please keep me posted? Aly Vhttps://www.blogger.com/profile/12018292974267917861noreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-50628556183789925572014-08-15T06:04:35.853-04:002014-08-15T06:04:35.853-04:00I suffered a TBI 11 years ago and now about a mont...I suffered a TBI 11 years ago and now about a month ago I had a Seizure. I have been disabled for 10 years,now I have another problem to deal with, Cavernous Angioma! I'm going in for an MRA,I had an MRI last month that showed a problem.Im 45 and worried!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-86143308596763440312014-08-12T08:35:48.779-04:002014-08-12T08:35:48.779-04:00Alyson,
I'm in Australia, so I can't reall...Alyson,<br />I'm in Australia, so I can't really come and visit you, sorry, but, if you enjoy chatting online, well, I'll be your friend. :)<br />Suzy knows me pretty well, so I think she'll vouch for me. ;)<br /><br />I'm sending my best wishes over to you from Tasmania.<br />Brett :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-46259375381298385122014-07-08T12:17:14.191-04:002014-07-08T12:17:14.191-04:00Hi there! My name is Cameron Von St. James and I h...Hi there! My name is Cameron Von St. James and I had a quick question for you & was wondering if you could please email me when you have a free moment. Thanks! I really hope to hear from you soon and appreciate you taking the time. ☺ cvonstjames AT gmail DOT comAnonymoushttps://www.blogger.com/profile/13224008685151269525noreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-78318643471956258822014-05-29T00:19:29.671-04:002014-05-29T00:19:29.671-04:00Valeri,
I was referred to Dr. Jonathan Silver in ...Valeri,<br /><br />I was referred to Dr. Jonathan Silver in NYC where I live. He made the diagnosis. He knows Dr. S and all of his work. He did not think there was any reason for me to meet him. The diagnosis was such a relief for me. I knew what I was experiencing but I didn't know why. Things finally made sense. I hope you are somewhere that you can get the help you need. You have to be your own advocate. Good luck.<br />AlysonAly Vhttps://www.blogger.com/profile/12018292974267917861noreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-77377023753296685142014-05-28T23:02:58.790-04:002014-05-28T23:02:58.790-04:00I really hope you are still around here. For the l...I really hope you are still around here. For the last 18months I have been told that I should not have the sympstoms i do, "there is no reason" have you met with Dr Shuahhman from Boston? How did you get someone to listen? thanks!Anonymoushttps://www.blogger.com/profile/02036620328469833269noreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-28403527829827858512014-05-28T07:19:37.068-04:002014-05-28T07:19:37.068-04:00John Baxter,
Thanks for your comment and the arti... John Baxter,<br /><br />Thanks for your comment and the article. It was interesting and certainly relevant. It's good to know that there is more and more validation and research being done in this area. <br /><br />I also really appreciate your insight. For the first few years post-surgery, I did a tremendous amount of research. It was frustrating that I was not getting any answers from doctors for so long. I down-loaded dozens of articles in my search for understanding. At some point, (I guess after I lost my job) I decided how and what happened to my brain was not as important as figuring out how to use what I have. <br /><br />Keep fighting the good fight. The human spirit constantly amazes me. We possess the ability to deal with what comes our way. I need to remind myself of this every day.<br /><br />AlysonAly Vhttps://www.blogger.com/profile/12018292974267917861noreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-89392493141644383842014-05-28T02:42:26.092-04:002014-05-28T02:42:26.092-04:00Hi,
I'm John, had a big meningioma removed f...Hi,<br /> I'm John, had a big meningioma removed from top crown area of my brain and have another that is on my cerebellum, been radiated...now bigger... I have many of the same symptoms as you and will refer you to this article for a start. <br /> Half the battle is Knowing your enemy. Think of the cerebellum as a 'regulator' of MANY brain processes. We have to fight many things to have quality of life but the lack of drive/energy and loss of purpose are the BIG two for me as well as yourself, I see.<br /> I have also been a paraplegic for 18+ yrs so I know a little about self motivation also :)<br /> http://ajp.psychiatryonline.org/data/Journals/NP/3976/09jnp245.PDF<br /><br /> That's a pdf that shows enough to get you started. You are a teacher,understand that you are NOW a researcher to seek relevant info for yourself to make things work for you again.<br /> John John D Baxterhttps://www.blogger.com/profile/03125902961424743443noreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-9740693104395856762014-05-12T21:43:24.513-04:002014-05-12T21:43:24.513-04:00Dear Alyson,
I love reading your blog every time y...Dear Alyson,<br />I love reading your blog every time you update it. I think part of the reason is because you're so honest with your thoughts and feelings about life, and what you write certainly has the ring of truth and sincerity.<br /><br />I sometimes comment on your posts, but, it's taken me a while with this entry to work out what I'd like to say--sorry for that. <br /><br />But I think you've got every right to feel the way you do, they're your feelings, and as real to you, as anyones' are to them. It seems like there's still some grieving taking place, due to the very real sense of loss you have for your teaching career and your old life. I can only imagine how lucky your students must have been to have had such a loving, caring, teacher guiding them, and you should feel very good about the difference you've made in so many little lives, because that is something that can stay with them for the rest of their lives. It's a legacy that lives on, way beyond your tenure at the school dear. In that sense, you are actually still making a positive impact on them. :)<br /><br />I'm really sorry to read that you think you need to forgive yourself though. You didn't ask to get sick. Developing a tumour and needing surgery isn't your fault. It isn't anybodys fault. You are here, now, because you were brave enough to have the operation that saved your life. And I think your family and friends are very, very glad you are still here. (I know I certainly am, and I've never actually met you, dear! Although I would love to one day.)<br /><br />Can I ask you, please, though, not to wait until you feel like you are whole again to begin loving yourself? We're all, every single one of us, a work in progress, and none of us perfect. So you've just got to love the person you are, right now, dear, just like your friends and family already do.<br /><br />Your sewing is wonderful. I've seen some photographs on facebook. You're really good! Time spent constructively that makes you feel better about life can neve be a bad thing. In my case it's a passion for photography (maybe you'd enjoy that, too?) but, it doesn't matter exactly what it is. Keep on doing things that give you happiness, please, because it's probably one of the best cures anybody can have for depression, OK?<br /><br />You'll never be invisible to me Alyson, and I'm sending my love and best wishes, always.<br />Brett xoxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5842331537436075746.post-1303272041644490922014-03-03T07:53:16.236-05:002014-03-03T07:53:16.236-05:00This is so good to read, Alyson. Until a few years...This is so good to read, Alyson. Until a few years ago, I thought I didn't have an artistic bone in my body. But people purchase my photographs on a regular basis. It's a good feeling, when people want something you have made yourself, isn't it?<br /><br />I'm looking forward to hearing more about your artistic endeavours in future blogs by you. <br />Sending my love and best wishes<br />Brett xoxAnonymousnoreply@blogger.com